Genomics and democracy : towards a 'lingua democratica' for the public debate on genomics /
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This book addresses the ethical and political questions flowing from the vastly increased possibilities to manipulate the genetic properties of organisms, including human beings. Due to the great complexity of the scientific fields involved, these questions are framed and answered mostly by scientific experts. But the new technological possibilities and social practices connected with genetic manipulation intrude into domains that for a long time have been the provenance of religious and secular worldviews and touch upon deep-seated convictions and emotions. Moreover they are strongly influenced by economic and political interests. As a consequence, questions of scientific truth and technical control are getting more and more mixed up with questions regarding values and interests. Against this background, this book starts from the premise that neither clinging to the idea of value-neutral, disinterested science, nor the complete abandonment of this idea in favour of postmodern relativism will be of much help here. Instead the different contributions to this book explore the idea of a 'lingua democratica' for the life sciences and sketch the contours of this notion by focusing on a broad range of conceptual and practical issues in the field of genomics.
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1 online resource (355 pages) : illustrations. :
Includes bibliographical references and index. :
9789401209755 :
Available to subscribing member institutions only.
Genetic transparency? : ethical and social implications of next generation human genomics and genetic medicine /
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Genetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then - the authors of this volume claim - the rules that regulate genetic transparency should be debated carefully, openly and critically. It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems. Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti
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1 online resource (292 pages) : illustrations. :
Includes bibliographical references and index. :
9789004311893 :
2211-4416 ; :
Available to subscribing member institutions only.
Islamic ethics and the genome question /
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Islamic Ethics and the Genome Question is one of the very first academic works, which examine the field of genomics from an Islamic perspective. This twelve-chapter volume presents the results from a pioneering seminar held in 2017 at the Research Center for Islamic Legislation andamp; Ethics, College of Islamic Studies, Hamad Bin Khalifa University, in Qatar. The contributors to this volume, coming from different disciplines and specializations, approached the key ethical questions raised by the emerging field of genomics, viz. the Genome Question (GQ), from various angles and perspectives. Their shared thesis is that the breadth and depth of both the GQ and the Islamic tradition necessitate going beyond just producing quick answers in response to immediate questions. In order to accommodate the complexity and wide scope of the GQ, the volume included critical analyses of the ethical discourse on genomics, from outside the Islamic tradition. Within the Islamic tradition, the contributing authors explored how the QG can be better explored by involving insights from various disciplines including Quran exegesis, Islamic jurisprudence, philosophy and theology. Besides its interest for researchers and students specialized in ethics, bioethics and Islamic studies, this volume will be a source of important information for geneticists, genomicists and social scientists who are interested in the ethical discourse about genomics in the Muslim world. Contributors include Arzoo Ahmed, Abbas Amir, Saadia Bendenia, Mohammed Ghaly, Mutaz al-Khatib, Amara Naceur, Aasim I. Padela, Ayman Shabana, Trevor Stammers, Mehrunisha Suleman and Hub Zwart.
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1 online resource. :
9789004392137