Promoting the "Human" in Law, Policy, and Medicine : Essays in Honour of Bartha Maria Knoppers /

Promoting the "Human" in Law, Policy, and Medicine : Essays in Honour of Bartha Maria Knoppers /

Professor Bartha Maria Knoppers stepped down from the Canada Research Chair in Law and Medicine at McGill University in April 2024, a post she held for more than 20 years. Professor Knoppers consistently prioritized "humanity" in her academic work and in policymaking. As such, she forged a...

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محفوظ في:

مؤلفون آخرون: Beauvais, Michael J. S. (المحرر), Dove, Edward S. (المحرر), Rahimzadeh, Vasiliki (المحرر)

التنسيق: كتاب الكتروني

اللغة: English

منشور في: Leiden ; Boston : Brill | Nijhoff, 2025.

سلاسل: Global Health, Human Rights and Social Justice ; 1.
Human Rights and Humanitarian Law E-Books Online, Collection 2025.

الموضوعات:

Health Law.
Human rights.

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رقم الطلب: JX1977

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جدول المحتويات:
  • Front Matter
  • Introduction /
  • Edward S. Dove , Vasiliki Rahimzadeh , and Michael J. S. Beauvais
  • Chapter 1 DTC Pharmacogenetic Testing and Health Insurance: Good for Consumers, Good for Business? /
  • Maxwell Brodie and Yann Joly
  • Vignette 25 Years of Enriching Collaboration with Bartha M. Knoppers /
  • Jacques Simard
  • Vignette A Lifetime of Collaboration /
  • Denise Avard
  • Chapter 2 If We Build It, They Will Come: Population Biobanks and the Enduring Legacy of Bartha Maria Knoppers /
  • Ma'n H. Zawati and Alycia Noë
  • Vignette A Cameo on BMK /
  • Claude Laberge
  • Vignette Nice and Smart /
  • Jennifer Stoddart
  • Chapter 3 Anticipatory International Ethics /
  • Ruth Chadwick
  • Vignette Vivid Memories with Bartha Knoppers /
  • Annelien Bredenoord
  • Vignette A Tribute to Bartha Maria Knoppers: Dear Friend and Collaborator /
  • Mark A. Rothstein
  • Chapter 4 Policymaking as a Humanistic Endeavour: On the Art and Science of Genomics Policy Development /
  • Eric M. Meslin and James V. Lavery
  • Vignette Bartha Maria Knoppers: Accolades from the Antipodes /
  • Dianne Nicol and Don Chalmers
  • Vignette Overheard BMK /
  • Timothy Caulfield
  • Chapter 5 Bioethics "Laws": Paradox or Way of the Future? /
  • Emmanuelle Rial-Sebbag and Anne Cambon-Thomsen
  • Vignette Bartha, Biobanking, and Success /
  • Jane Kaye
  • Vignette Thirty Years of Learning from Bartha /
  • Pilar Nicolás
  • Chapter 6 Bartha Maria Knoppers: A Standard-Bearer for Responsible Genomic and Health Data Sharing /
  • Adrian Thorogood and Fruzsina Molnár-Gábor
  • Vignette The Great BMK Effect /
  • Patricia Kosseim
  • Vignette Bartha Knoppers-Colleague and Friend /
  • Martin Bobrow
  • Chapter 7 The Sweet Smell of the Rose - Names, Categories, and the Authentic Meaning of Being Human /
  • R. Alta Charo
  • Vignette Trademark Bartha /
  • Jeffrey Kahn
  • Vignette The Magic Tin: Cookies, Policy, Ethics, and Mentorship /
  • Rosario Isasi
  • Chapter 8 Population-Based Genome-Wide Testing in Babies: Newborn Screening or Mission Creep? /
  • Jan M. Friedman
  • Vignette BMK's Garden: Helping Us Bloom and Grow /
  • Nadine Thorsen
  • Vignette Bartha and Me /
  • Rose-Marie Hozyan
  • Chapter 9 A Human Rights Lens to Understanding the Concept of "Serious" Genetic Conditions /
  • Erika Kleiderman and Vardit Ravitsky
  • Vignette Bartha M. Knoppers: Why Family Matters /
  • Trudo Lemmens
  • Vignette The Light Shines Back on You: Protégés of Bartha M. Knoppers /
  • Judy Illes
  • Chapter 10 Defining Best Interests: Challenges and Perspectives in Paediatric Ethics /
  • Pascal Borry
  • Vignette Mentorship and Gratitude: A Thank You to Professor Knoppers /
  • Dimitri Patrinos
  • Vignette Shining Bright: A Journey of Illumination, Influence, and Inspiration /
  • Amalia M. Issa
  • Chapter 11 "Beyond the Moral Appeals of Bioethics:" International Human Rights Law as the Basis for the International Governance in the Biomedical Science /
  • Andrea Boggio and Rumiana Yotova
  • Vignette A Memorable and Enjoyable 20 Years /
  • Kazuto Kato
  • Vignette Bartha Maria Knoppers: A Fantastic Woman! /
  • Michèle Stanton-Jean
  • Chapter 12 Persons, Genomes, and Populations /
  • Ron Zimmern
  • Vignette Bartha, CGP , and the McGill Genome Centre /
  • Mark Lathrop
  • Vignette Bartha's Presence /
  • Ubaka Ogbogu
  • Chapter 13 Human Diversity, Equity, and Bartha Maria Knoppers /
  • Henry T. Greely
  • Vignette Human Dignity at the Crossroads of Law and Science /
  • Patrick A. Molinari
  • Vignette A Tribute to Bartha /
  • Graeme Laurie
  • Chapter 14 Families through the Lens of Genomics: Obligation or Consideration? /
  • Ellen Wright Clayton
  • Vignette Bartha: An Exemplary Academic /
  • David Townend
  • Vignette Climbing Every Mountain: Bartha Maria's Melody of Mentorship /
  • Nicole Palmour
  • Chapter 15 Whither Consent in Clinical Genetics? /
  • Susan E. Wallace
  • Vignette Bartha's True Legacy /
  • Jasper A. Bovenberg
  • Vignette Thoughts about Bartha and Her Work /
  • Eva Winkler
  • Chapter 16 Securing the "Human" in the Generalization of Risk Stratification Algorithms through the Human Right to Science /
  • Calvin Wai-Loon Ho
  • Vignette Positivity and Perseverance /
  • Alexander Bernier
  • Vignette Bartha Maria Knoppers: A Game Changer /
  • Alexandra Obadia
  • Back Matter.